Hemophilia

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

Hemophilia Federation of America works to remove barriers to choice of treatment and to improve the care and quality of life for all people with bleeding disorders.

The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.